The Relationship Between Coping Strategy And Social Support With Caregiver Burden In Parents/ Caregivers Of Down Syndrome In Surabaya
DOI:
https://doi.org/10.38142/ijesss.v2i2.187Keywords:
coping strategy, social support, caregiver burdenAbstract
The goal of this study was to analyze the relationship between coping strategies and social support with caregiver burden in parents/caregivers Down syndrome in Surabaya. Method: The method used is the design of observational analytical research, cross sectional, against parents or caregivers of Down syndrome in Surabaya. Ways of Coping Questionnaire (WCQ) instrument to measure coping strategies, The Multidimensional Scale of Perceived Social Support (MSPSS) for measuring social support, and Caregiver Burden Assessment (CBA) to measure caregiver burden. Statistical analysis uses correlation tests. Results: The study sample was 37 parents / caregivers of children with Down syndrome in Surabaya. The results obtained by parents / caregivers Down syndrome dominantly using coping focused on emotions (89.4%). High levels of social support were felt by parents/caregivers (51.4%) and the total burden of parents/caregivers was low and very low (64.8%). The results of the analysis between coping strategy with caregiver burden, and social support analysis with caregiver burden, did not get a meaningful relationship (p>0.05). Research found a meaningful relationship between parents/caregivers who have severe problems and the level of independence ana k Down syndrome with caregiver burden (p<0.05). Discussion: From the above results it can be concluded that there is no meaningful relationship between coping strategy and social support with caregiver burden in parents / caregivers of Down syndrome. Caregiver burden is more related to the condition of parents who have severe problems in the last 6 months and the level of independence of children Down syndrome.
Downloads
References
Adelman, R.D., Tmanova, L.L., Delgado, D., Dion, S., 2015. Caregiver Burden A Clinical Review. https://doi.org/10.1001/jama.2014.304.
Alam El-Deen, N., Alwakeel, A.A., El-Gilany, A.H., Wahba, Y., 2021a. Burden of family caregivers of Down syndrome children: a cross-sectional study. Family Practice 38, 160–165. https://doi.org/10.1093/fampra/cmaa097
Alam El-Deen, N., Alwakeel, A.A., El-Gilany, A.H., Wahba, Y., 2021b. Burden of family caregivers of Down syndrome children: a cross-sectional study. Family Practice 38, 160–165. https://doi.org/10.1093/fampra/cmaa097
Alexander, T., Walendzik, J., 2016. Raising a Child with Down Syndrome: Do Preferred Coping Strategies Explain Differences in Parental Health? Psychology 07, 28–39. https://doi.org/10.4236/psych.2016.71005.
Ariani Y, Soeharso P dan Sjarif DR, 2017.’Genetic and genomic medicine in Indonesia’.Molecular Genetics and Genomic Medicine, 5(2): 103-109.
Bawalsah, J.A., 2016. Stress and Coping Strategies in Parents of Children with Physical, Mental, and Hearing Disabilities in Jordan. International Journal of Education 8, 1. https://doi.org/10.5296/ije.v8i1.8811.
Bourke, J., Ricciardo, B., Bebbington, A., Aiberti, K., Jacoby, P., Dyke, P., Msall, M., Bower, C., Leonard, H., 2009. Maternal physical and mental health in children with Down syndrome. Journal of Paediatrics 153, 320–326. https://doi.org/10.1016/j.jpeds.2008.02.047.Maternal.
Cohen, S., & Wills, T. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98, 310–357.
Davis, A.S., 2008. Children With Down Syndrome: Implications for Assessment and Intervention in the School. School Psychology Quarterly 23, 271–281. https://doi.org/10.1037/1045-3830.23.2.271
del-Pino-Casado, R., Frías-Osuna, A., Palomino-Moral, P.A., Ruzafa-Martínez, M., Ramos-Morcillo, A.J., 2018. Social support and subjective burden in caregivers of adults and older adults: A meta-analysis. PLoS ONE 13, 1–18. https://doi.org/10.1371/journal.pone.0189874
Lam, L.W., Mackenzie, A.E., 2002. Coping with a child with down syndrome: The experiences of mothers in Hong Kong. Qualitative Health Research 12, 223– 237. https://doi.org/10.1177/104973202129119856
Liu, Z., Heffernan, C., Tan, J., 2020. Caregiver burden: A concept analysis. International Journal of Nursing Sciences 7, 438–445. https://doi.org/10.1016/j.ijnss.2020.07.012
Norizan, A., Shamsuddin, K., 2010. Predictors of parenting stress among Malaysian mothers of children with Down syndrome. Journal of Intellectual Disability Research 54, 992–1003. https://doi.org/10.1111/j.1365-2788.2010.01324.
Oh, H., Lee, E.K.O., 2009. Caregiver burden and social support among mothers raising children with developmental disabilities in South Korea. International Journal of Disability, Development and Education 56, 149–167. https://doi.org/10.1080/10349120902868624
Oti-Boadi, M., 2017. Exploring the Lived Experiences of Mothers of Children With Intellectual Disability in Ghana. SAGE Open 7. https://doi.org/10.1177/2158244017745578.
Schoenmakers, E. C., Tilburg, T. G. Van and Fokkema, T. (2015) 'Problem- focused and emotion-focused coping options and loneliness : how are they related ?', (2015), pp. 153–161. DOI: 10.1007/s10433-015-0336-1.
Stephanie L. Sherman,* Emily G. Allen, Lora H. Bean, and S.B.F., 2007. EPIDEMIOLOGY OF DOWN SYNDROME. Department of Human Genetics, Emory University School of Medicine, Atlanta, Georgia Down. https://doi.org/10.1002/mrdd.
Zarit, S.H.; Reever, K.E.; Bach-Peterson, J. Relatives of the Impaired Elderly: Correlates of Feelings of Burden. Gerontologist 1980, 20, 649–655
Downloads
Published
Issue
Section
License
Copyright (c) 2021 Monika LUKUT, Sasanti Yuniar YUNIAR, Izzatul Fithriyah FITHRIYAH
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
Creative Commons Attribution-NonCommercial 4.0 International License.